As I write this post, I am attempting to keep up with the schedule that I was maintaining during my time away from work…but it’s hard! I’m back to waking up early and actually getting ready for work. My mornings are still a bit slow and I have to just jump right into my routine–ready or not! I’m back to feeling as if there aren’t enough hours in the day, but I need more hours because especially on a day like yesterday, there’s just so much to do! I’m forcefully reminded of the status of my health, yet again, and trying to maintain all positivity in order to make it through the day.
Tag Archives: Support
Prior to purchasing Ruby (my car), I decided to pay for lessons to learn how to drive. Now, anyone who knows me knows how intensely terrified I was of driving–this is no exaggeration! Why was I so afraid of driving you ask? A seed had been planted in my head years ago, that drove me to believe that I’d be a terrible driver. While helping my father work on his car, I’d made a small error and rather than simply teaching me the correct way, he yelled at me and told me that I should never get behind the wheel of a car because I’d “kill everyone by stepping on the gas like that!” This may seem silly…clearly my father was irritated and said those words out of anger–why would I internalize them so much? Whether it was intentional or not, those words resonated with me for years! For years I was terrified of learning how to drive and allowed this fear to prevent me from even trying…
I Just Need A Nap!
Yesterday was one of the most beautiful days New York City has seen in a while! The sun was shining, there was a light breeze in the air, it was between 75° and 80° for the majority of the day, everyone that I encountered was in such a positive mood–just beautiful! I woke up early and headed straight to the hospital for another follow-up appointment with my rheumatologist and a pulmonary functions exam. Thank God, things are beginning to come back normal (back to how they were prior to my hospitalization) and I’m able to do more and more each day! Following my doctor appointment, I had plans to visit an old co-teacher that I hadn’t spent time with in a while, but first, I had to run an errand with my mom. By the time I made it to the upper west side, I was bit tired! Ironically, when I got to my friend’s apartment, both of her kids were taking their naps…the life right?! This got me thinking…why don’t adults get to take naps during the day?! Especially people like me with Lupus. I’m sure napping during the day has its benefits…
Put It All Into Perspective…(Dos and Don’ts for Supporting Lupus Patients)
Being diagnosed with Lupus, or other autoimmune diseases, doesn’t only affect the patient, but the people in their lives as well. One of the most challenging yet necessary tasks that is given to friends and family members, is the task of giving support. When you love someone dearly, it is only natural for you to want to do all that you can to help them feel love and encouragement. To some, this may come naturally, and to others…not so much. Take my mom for instance, from my perspective, my mom handled my diagnosis so well! She never shed a tear (or so I thought), she was always there when I needed her (and still is), and was always prepared with a word from her heart to provide me with encouragement. This post is less for patients and more for friends and family members of them. What are some “Dos and Don’ts” for supporting someone with Lupus?
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