Category Archives: Diagnosis and Treatment

The Lupus Diet (as communicated by Dr. Axe)

I found this amazing article written by Dr. Axe on the importance of making healthy dietary choices in  order to manage Lupus symptoms. He discusses everything from foods that we should and should not eat, as well as the benefits of making these choices. I am quickly sharing the most important information regarding foods that he recommends for Lupus patients, but if you’d like to read more on his insights, you can find the article here.

Continue reading The Lupus Diet (as communicated by Dr. Axe)

Veggie-Chicken Meal Prep? Yes, Please!

It’s been one week since I’ve launched my meal prepping and I have to say that it was a success! It was so nice being able to go to my fridge and put together a well balanced meal in less than 10 minutes. Lunches were painless, as I usually substituted carbs for a garden salad using ingredients that I already had in my fridge. After deciding to prepare a single package of the ground turkey meat and prepping for 2, I had to start cooking again on Thursday, but I think that’s still pretty good! If you are only prepping for yourself, you should have definitely been good for the week!

Continue reading Veggie-Chicken Meal Prep? Yes, Please!

…But I Love It!!!

Approximately a year ago, I made the decision to transition to a gluten-free diet. My logic? I’d done some research on the impact of gluten on patients who suffer with inflammation and the vast majority of what I’d found argued that individuals with autoimmune conditions should remove gluten from their diets. So naturally, in an effort to improve my health, that’s just what I did!

Continue reading …But I Love It!!!

Imagine That…

It’s happened guys. The dreadful taper. Following my visit with my rheumatologist yesterday, I was instructed to taper my steroid dosage. In previous posts, I mentioned how wonderful prednisone was at numbing Lupus related pain and fatigue. While many patients benefit from this relief, long term side effects of prednisone usage are known to create further health concerns later on in life. Because of this, doctors try their best to stabilize patient symptoms and remove prednisone from the list of medications being consumed daily. Starting last night, I reduced my dosage from 30mg twice per day to 20mg twice per day, and boy let me tell you, I am crashing. I woke up this morning feeling like I’d had the wind knocked out of me. Making it through today has definitely been a challenge in comparison to what I’ve been experiencing over the past week. It’s been quite some time since I’ve tried to taper down from my usual 9mg per day, so you can only imagine the confusion that my body is going through right now. I thought that things were getting better, and while my emotional state is much more stable, the discomfort that I currently feel is a reminder of my reality. A reality where I have minimal control and rely on medication to determine my abilities. Imagine that…


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If you know anyone suffering with Lupus and/or any other “Invisible Disease”, please feel free to share with them directly!

©joezettesjourney/Mar2017

 

Did You Cuddle Yet Today?!

It’s National Cuddly Kitten Day guys! And even if you don’t have a cute little furry kitty at home to snuggle up with, you need to cuddle something! It doesn’t have to be a kitty, pooch, or even a bunny…studies have shown that touch can be a key component of healing and healthy living that improves your everyday life!

Continue reading Did You Cuddle Yet Today?!

Work Work Work

As I lay in my hospital bed with an IV in my arm and antibiotics and steroids being pumped into my system, my mind can’t help but wander: How are my students doing? I wish I had my laptop. Ugh, I have to do my lesson plans! I can’t get work off of my mind and quite frankly, it’s sad.

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For the past several weeks, my Lupus symptoms have gone absolutely haywire. My fatigue has become unbearable, and I’ve developed daily high fevers that fluctuate between 101 and 103 degrees. But of course, I live in New York City, I have a hustler’s mentality, and I care about my team. So what do I do? I suck it up and deal. I self-diagnose and “treat” with over-the-counter medication. I continue to push myself to get dressed every morning. I get pretty, put a smile on, and get myself to work.

I’ve always prided myself on being an ambitious, hardworking, and dedicated person. Unfortunately, being all of these things AND having an autoimmune disease has driven me into the ground. One of the most challenging things I had to learn to do at the start of my diagnosis was to listen to my body rather than my head. In my head, I can do anything! Then my body begins to scream and argue, reminding me that this is not the case.

Then I ask myself, is this always realistic? I’m a single (non-married) woman living in a city that never sleeps. Where people work an average of at least 50 hours per week and the expectations are the same for us all–bills gotta get paid! Life doesn’t say, “She has Lupus, so let’s make her bills less and decrease her work load.” I work hard and do my best to take care of my responsibilities and naturally in the process, tend to put my health to the side at times.

This entire experience of being hospitalized has reminded me that I am no good to the people in my life (friends, family, colleagues, or students) if I’m confined to a bed. I HAVE to put my health first in order to do all of the things that I love doing. I KNOW how challenging it is to balance life, especially when battling with Lupus, but as someone who is going through the trenches right now, I truly encourage all sufferers to put your health first. The report that’s due tomorrow isn’t worth it. That extra hour at the gym isn’t worth it. Not even the late night dinner with your BFF is worth it. Take a step back, relax, and please be well.

Following this read, please take a moment to pray for me and my recovery. The Bible says “Pray without ceasing” (1 Thessalonians 5:17) and I truly believe that prayer in numbers can make mountains move!

 

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Please like and subscribe to receive notifications of new posts by email!

If you know anyone suffering with Lupus and/or any other “Invisible Disease”, please feel free to share with them directly!

©joezettesjourney/Mar2017